Gemma Taylor had never heard of adenomyosis before she was diagnosed just last week, after a year of painful unexplained symptoms that her GP had put down to IBS. And she’s not the only one. Adenomyosis is the even less well-known sister condition of endometriosis – but while endometriosis is slowly beginning to benefit from recent public awareness campaigns, adenomyosis is still virtually unheard of by patients and doctors alike.
“My symptoms started in April last year, with abdominal pains and sickness. I thought it was a bug, but it just carried on. I was bloated all the time, feeling sick, having awful cramps where all I could do was lie down and wait for it to pass, and a combination of diarrhoea and constipation,” Gemma, a 37-year-old marketing manager from Cornwall, explains.
“I noticed my symptoms were getting worse in the run-up to, and around the time of, my period, so I spoke to another doctor and was referred for an internal (transvaginal) ultrasound, where they found fibroids and adenomyosis.”